Patient & Provider Stories
Patients and medical professionals share their stories dealing with access barriers that keep them and their patients from accessing the treatment they need.
Patient Stories
Bullous Pemphigoid Patient
“It's been about 2.5 years and I've learned how to manage my condition, advocate for my care and yes, have a life - and I am doing well.”
Caregiver - Epidermolysis Bullosa
“With increased awareness and understanding, we believe that Brady will see treatment and hopefully a cure within his lifetime.”
Caregiver - Eczema
“When I think of our family's struggle with eczema, one phrase comes to mind: 'it shouldn't have to be this way'.”
Health Care Provider Stories
Dermatologist
“They’re told that I chose a medication that’s too expensive for them,” he noted. The loss of trust can hurt the physician-patient relationships…which is ‘age-old, sacred.’
Registered Nurse
“You spend a lot of time on phone calls, letters, fighting with insurance companies,” Markham explained, “time that you otherwise could be devoting to that patient.”
Medical Assistant
Courtney shares her experience with step therapy and describes grappling with “about 22 messages every 48 hours from insurance companies or patients” related to prescription medications.